How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:

Welcome

A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog

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Showing posts with label miscarriage. Show all posts
Showing posts with label miscarriage. Show all posts

Wednesday, October 22, 2008

Miscarriage: must doctors make our grief worse?

Insensitive health workers compound the suffering caused by miscarriage, but a Mumsnet campaign aims to change matters

Belinda Benton's second pregnancy was going swimmingly - or so she thought - until she went to hospital, at 12 weeks, for a routine ultrasound scan. “On my way to the appointment I realised that I was bleeding,” she says. “When I got there they said they would go ahead with the scan and see what was happening.”

When the ultrasound equipment was switched on, says Benton, “there was just silence. No one said anything until I said, ‘There's nothing there, is there?' And the doctor burbled and eventually said, ‘No, there's no baby'.”

For Benton and her partner, the loss of their longed-for second baby was a tragedy - the scan picture showed that the foetus had stopped growing at six weeks - but there was scant sympathy from the hospital staff.

“No one offered any condolences or said they were sorry for our loss,” she remembers. “We were terribly upset, and we had to leave the same way we'd arrived, walking through a waiting room full of women waiting for scans. I felt awful, and the last thing these people needed was to see our devastated faces.”

Benton was told that she could have her uterus emptied surgically - “evacuation of the retained products of conception” or ERPC, in hospital parlance - or she could go home and miscarry naturally. “I asked how bad that would be and they said that it would be like a heavy period, so I thought I'd go home and wait for that,” she says.

In fact, the next few days were agony. “It was horrendous,” she says of her miscarriage three months ago. “It was like a birth. I had painful contractions; it was labour. I almost went into A&E.”

“I was given misleading information on what the experience of miscarriage was like. If I'd known how awful it was going to be, I'd have opted for surgery,” she says. “There is no help for women who are miscarrying at home - there should be someone you can phone or get advice from. I also object to the terminology - ‘evacuation of the retained products of conception' sounds horrible; they should call it something like surgical assistance around miscarriage. And there needs to be a lot more understanding on the part of health professionals that miscarriage is an emotional experience as much as a physical one. It's a huge shock, a terrible loss, and it helps to have those feelings at least acknowledged by the hospital staff with whom you come into contact.”

In recent weeks and months Benson, and hundreds of others like her, have been logging on to the parents' website Mumsnet to chart their experiences of what can seem like the uncaring, insensitive face of the NHS - doctors, nurses, midwives and protocols that appear to take no account of the pain, physical or emotional, involved in miscarriage.

To judge from the Mumsnet comments, health professionals often don't take account of the extent to which losing a baby is a personal tragedy More

Thursday, September 13, 2007

CiaoLapo Onlus

Please note the addition of a new link in the sidebar - to CiaoLapo Onlus.

The founder, Claudia, writes:

www.ciaolapo.it/en is the website of CiaoLapo Onlus, a non-lucrative, non-religious association founded in 2006 by my husband and I (both medical doctors) after the stillbirth of our second child, Lapo. Aims of CiaoLapo Onlus are to promote research on stillbirth and to offer psychological support to parents after stillbirth or perinatal death. We are currently offering weekly online self-help groups to breaved parents and free online psychological and gynecological consults to the associates. During last March, our first national congress was held in Florence and the second one is going to take place in October.

Monday, August 6, 2007

Perinatal Loss: improving care and prevention

29 September - 2 October 2007
Birmingham, UK


This international conference is hosted by Sands and the Perinatal Institute, on behalf of the International Stillbirth Alliance.

visit the conference website here www.isa2007.org
download the conference flyer here
to register visit the conference site or register directly with Profile Productions

The conference will focus on perinatal loss – the human impact, the causes, and the possibilities for prevention. Its purpose is to gain insights and ideas for future collaborative initiatives to reduce the burden of perinatal death.

This is a rare opportunity to bring together researchers, bereaved families, clinicians, health care professionals and support organisations from many different countries.

Many clinicians and scientists devote much of their working lives to furthering the understanding of adverse pregnancy outcome. Many bereaved parents, knowing the real consequences of baby loss, are committed to improving the care that others who have suffered a loss receive. Both groups have much in common and together can represent a very powerful force for change.

Aims:

  • to present the human consequences of stillbirth and other perinatal loss
  • to share information on current activities and research programmes
  • to strengthen collaboration on initiatives to reduce perinatal death
  • to share knowledge and experience of best practice in care when a baby dies
  • to encourage networking and informal exchange.

More

Wednesday, July 4, 2007

New Zealand children’s picture book helps to cope with the death of a baby

A New Zealand picture book aimed at helping children to understand the death of a baby in their family/whanau will be launched in Wellington by Mayor Kerry Prendergast on Monday (2 July).

What’s Happened to Baby? features illustrations by renowned Wellington illustrator Ali Teo, and helps parents and caregivers to guide young children through the experience of this difficult loss.

The book has been produced by skylight – the national support organisation aimed at building resilient young New Zealanders – in association with SIDS Wellington (Sudden Infant Death Support) and SANDS Wellington (Stillbirth and Newborn Death Support).

skylight’s resource manager, Tricia Irving, said What’s Happened to Baby? had been carefully designed to match a wide range of bereavement situations including miscarriage, stillbirth, cot death, and accidental or natural deaths of an infant or toddler.

“In this way it has been developed as a book that can serve and support a large number of bereaved New Zealand families/whanau,” she said.

“The death of an unborn or newborn child is extremely difficult for parents themselves to comprehend, let alone for their other children to understand. This book helps families/whanau to cope and deal with the grieving process together,” she said.

The book also features information to assist adults in supporting their bereaved children. More

Monday, May 28, 2007

Globe and Mail: Burying the unborn

CAROLYN ABRAHAM
From Saturday's Globe and Mail
May 26, 2007 at 2:24 AM EDT



On the afternoon of Feb. 3, 25 people gathered in the chapel of Smiths Funeral Home in Sarnia, Ont., to honour the passing of Angel Lynzey Burden.

The community sent flowers and cards of condolence. Angel's ashes sat on a table up front, in a decorative urn half the size of a coffee cup. (continue)



Note: This article will only be available online for a few more days, possibly a week. If you are not able to access it via the link provided, please contact us so we can email electronic copy to you.

Wednesday, May 23, 2007

Joy for parents after babies' deaths

Having three babies die in two years meant Claire Wright dreaded Mother's Day.

But this year will be different after the birth of healthy daughter Zoe in January.

"Before she was born I was really excited and eager to bring her home," says Claire. "It seems more natural to be a mum to a living baby, than to babies who have died." (continue)

Thursday, April 5, 2007

Email Recieved from Cailin’s Memories website

Cailin’s Memories is a not for profit, 501©3 tax-exempt corporation founded for the purpose of helping families who have lost their babies from miscarriage, prematurity, stillbirth, birth defects, or SIDS. We also will attempt to help and support families experiencing infertility. Our organization supplies hospitals education and resources to care for these families through our memory box/packet program.

Due to the nature of the types of babies that we care for, we have created two types of memorabilia for our families a memory box or a miscarriage packet. Both have been devised to validate the life of their child. Many of the items are in both the box and the packet because these items are tools for life after the loss of their little one. Some items included are: a poem journal with a book mark; Cailin’s Candle, a remembrance candle; a silk flower; a pregnancy and infant loss awareness support ribbon; a forget-me-not seed packet and an angel bear.

With the start and opening of our venture we dedicate this lifework to all babies and the importance of them in the family unit. All babies will be honored with our work; whether they are born alive or not; if they are born 5 weeks into a pregnancy or 40; if they live for 5 minutes in NICU or 5 months at home; weather they are born perfect or imperfect…

We concentrate mainly on our lost babies since this area in particularly is lacking in our society today. We will do our best to raise the awareness of our plight and to show the world that our babies deserve the same respect and honor as any other baby--and in fact we will accept no less. This starts with our memory making of our babies, thus validating there short lives. It continues with our remembrances of them and the honoring of them through special rituals. It is ongoing for the families lifetime in the respect of their wishes by the rest of society.

Mission Statement: Cailins Memories provides support to families experiencing perinatal loss. ‘Perinatal’ defined as preconception through the first year of life.

Our Vision: We will strive to reach the broadest population possible to improve and maintain optimal emotional and spiritual health and well being. We support families experiencing infertility, losses as experienced through the adoption process, all pregnancy related losses and infants born postnatal through other processes such as SIDS.

Our Values: The way Cailin's Memories will provide support is three-fold:

1. The physical making of memories via the 'memory box program' provided to bereaved families. We make physical momentoes of lost babies by way of picture taking, foot and hand printing, foot and hand molding, etc. All momentoes are wrapped in a 'Memory Box' for families to keep forever.

2. We will provide education to families via handouts, support information (list of groups, websites, etc.). We also provide education to doctors groups, hospital staff, and any ancillary staff caring for families experiencing a loss via inservices, conferences, and 24 hour available help.

3. Community advocacy and awareness will also be obtained through the above activities. We will also pioneer new campaigns to promote our mission.

Our organization is currently in 10 area hospitals, serving 13 different nursing floors.

Please feel free to contact us through our website http://www.cailinsmemories.org/ and please pass along the word about who we are.

Thank you for your time.

Jean Rowe RN and Lesley Gorny-Hornbeck RN
Founders of Cailin's Memories, Inc

Thursday, March 22, 2007

Oprah: Babyloss Theme

The Oprah Show is currently looking for people who have experienced the loss of a baby.

To submit your story, please visit Oprah's website.