How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:

Welcome

A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog

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Showing posts with label prematurity. Show all posts
Showing posts with label prematurity. Show all posts

Wednesday, November 4, 2009

Premature Births Are Fueling Higher Rates of Infant Mortality in U.S

Premature Births Are Fueling Higher Rates of Infant Mortality in U.S., Report Says
By DENISE GRADY
Published: November 3, 2009

High rates of premature birth are the main reason the United States has higher infant mortality than do many other rich countries, government researchers reported Tuesday in their first detailed analysis of a longstanding problem.

In Sweden, for instance, 6.3 percent of births were premature, compared with 12.4 percent in the United States in 2005, the latest year for which international rankings are available. Infant mortality also differed markedly: for every 1,000 births in the United States, 6.9 infants died before they turned 1, compared with 2.4 in Sweden. Twenty-nine other countries also had lower rates.

If the United States could match Sweden’s prematurity rate, the new report said, “nearly 8,000 infant deaths would be averted each year, and the U.S. infant mortality rate would be one-third lower.”

The first author of the report, Marian F. MacDorman, a statistician at the National Center for Health Statistics, said in an interview that the strong role prematurity played came as a surprise to her. More

Friday, July 27, 2007

Faith's Lodge

DANBURY, WIS. - Kelly Alvar sat tearfully inside Children's Hospital of Minneapolis, her 6-day-old son in her arms, knowing that his heart would soon stop beating. She and her husband, Nate, wanted their premature baby to have as peaceful a death as possible. When he lay there motionless that day in May, a bundle of soft skin and tufts of dark hair, their grieving officially began.

Friends and family tried to help, but they couldn't really understand, Kelly Alvar said. The couple wanted to get away. But everywhere they went, it seemed, they saw happy families and celebrations.

Now they and others will have a place to go, a retreat thought to be the only one of its kind in the nation. Faith's Lodge opened its gates Saturday in the northern Wisconsin forest to families that are grieving the death of a child or have a child who is seriously ill. The 80 acres, located about two hours from the Twin Cities, are designed with sensitivity to grief. More

Friday, June 29, 2007

It can happen to anyone

Gordon Brown is the new prime minister of the UK. Sadly he understands something about losing a much loved baby, suddenly and shockingly. It doesn't sound right to say "it's good" to have someone in a position of world power who understands the tragedy of losing a baby, but I guess you know what I mean.

When my first baby died almost a year ago, I struggled in the beginning to understand that I wasn't specifically chosen for this ordeal. It really can happen to anyone and can be completely indiscriminate.

Gordon Brown was the Chancellor of the Exchequer in the UK when his daughter Jennifer Jane Brown was born seven weeks prematurely by C-section. Her mother had a low level of amniotic fluid and Jennifer had IUGR. She was expected to be fine despite her low birth weight but she died ten days later after a brain haemorrhage, a common occurrence in pre-term babies.

I can imagine that, since she was born on 28th December and died on 7th January, the festive period brings back so many emotions for her parents.

Gordon and Sarah Brown now have two sons. Their first son was born two years after Jennifer Jane. Their second son was diagnosed with cystic fibrosis when he was four months old.

You can read an archive news story from 2002 about Jennifer Jane Brown here.

Monday, March 26, 2007

Canadian Study into prematurity

Nitro patches improve preemie health: study

Updated Sun. Mar. 25 2007 11:38 PM ET
CTV.ca News Staff

Queen's University researchers have found giving nitroglycerin to women in premature labour greatly improves their baby's health. (continue)