How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:

Welcome

A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog

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Wednesday, July 18, 2007

The parents with the hardest choice of all

Charles Rodeck is a pioneer in foetal medicine, a field in which huge scientific advances can have a terrible emotional cost. Here he speaks frankly about the painful dilemma - to agree to a termination or take the risk of having a disabled child - which thousands of couples must confront every year

Amelia Hill, Sunday July 15, 2007, The Observer

Sitting ramrod straight in his chair, George Woodall could not be any clearer. 'Cutting to the chase, if there's anything wrong with this baby at any stage, we don't want it,' he tells Professor Charles Rodeck, Britain's leading expert in foetal medicine. 'We want to have all the tests as soon as possible, regardless of how risky they are. We just want this over with.'

Lying on a bed next to her husband, Karen stares at the ceiling in silence. Still dazed by the speed with which her perfect world has begun to crumble around her, all she can think of is how light-hearted she was, two days earlier, when she arrived at her local hospital for her 12-week pregnancy scan.

'Almost as soon as the doctor began the ultrasound, I knew something was terribly wrong,' she told The Observer after her consultation with Rodeck. Within minutes, Karen says, she went from feeling happier than ever to more distressed and confused than she had thought possible. More

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