How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:


A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog


Thursday, August 30, 2007

MISS Foundation News Release - SIDS

Soft bedding found to be hazardous to infants
Arizona company teams with the MISS Foundation for safer alternative to crib blankets

Anthem, AZ - Despite the Consumer Product Safety Commission stating that soft bedding in the crib may be hazardous to babies under 12 months old, parents across the country continue to unwittingly endanger their child’s safety by using crib blankets, bumper pads and other soft bedding. The risk is unnecessary and the solution is practically old-fashioned in Europe – and lauded by many U.S. pediatricians, health experts and now the MISS Foundation (, an international organization that supports grieving families after a child’s death and educates on infant death prevention and awareness. Earthwalk Design LLC is proud to announce their partnership with the MISS Foundation to promote safer sleep practices for babies under 12 months of age. Their mutual goal is to spread the word about the potential risks of soft bedding by offering infant and toddler “sleep sacks” as a safer alternative to standard crib blankets. A portion of proceeds will be donated back to the MISS Foundation.

“Sleep sacks are wearable blankets that cannot be kicked off or cover a baby’s face,” states Christina Alborn, owner of Earthwalk Design and “Our PamperSack™ sleep sacks are not a garment, but are worn over pajamas. They keep a baby warm like a blanket would, but won’t cover a baby’s face like soft, loose bedding can.” Sleep sacks have been used extensively in Europe for the last thirty years.

Soft bedding, rebreathing and the SIDS factor

Soft bedding has been linked to a condition called “rebreathing.” Rebreathing occurs when bedding molds around or covers a baby’s face as they sleep, creating a stale pocket of expired air eventually reduced to carbon dioxide. Oceanside, CA, based pediatrician Dr. Douglas Stein states, “It has been established that rebreathing, when infants breathe their own exhaled air, is a theory associated with Sudden Infant Death Syndrome (SIDS). Laying infants to sleep on their backs has reduced the incidence of SIDS, but babies can still roll and therefore soft bedding is to be discouraged.”

“My goal is not to be an alarmist or to give parents a false sense of security,” says Alborn. “I just firmly believe in reducing identified risk factors until we have more information.” Joanne Cacciatore, CEO and Founder of the MISS Foundation, echoes the sentiment by stating, “Sleep sacks are a common sense choice. They have been recommended by medical associations, including the American Academy of Pediatrics, to reduce bedding related mortality. If these products help to save one baby’s life, we are grateful.”

1 comment:

Rosepetal said...

As the article says, these are quite common in Europe and have been for some time. Awareness on not putting loose blankets or even overcrowding the cot with stuffed toys etc seems high.