How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:

Welcome

A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog

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Monday, August 6, 2007

Perinatal Loss: improving care and prevention

29 September - 2 October 2007
Birmingham, UK


This international conference is hosted by Sands and the Perinatal Institute, on behalf of the International Stillbirth Alliance.

visit the conference website here www.isa2007.org
download the conference flyer here
to register visit the conference site or register directly with Profile Productions

The conference will focus on perinatal loss – the human impact, the causes, and the possibilities for prevention. Its purpose is to gain insights and ideas for future collaborative initiatives to reduce the burden of perinatal death.

This is a rare opportunity to bring together researchers, bereaved families, clinicians, health care professionals and support organisations from many different countries.

Many clinicians and scientists devote much of their working lives to furthering the understanding of adverse pregnancy outcome. Many bereaved parents, knowing the real consequences of baby loss, are committed to improving the care that others who have suffered a loss receive. Both groups have much in common and together can represent a very powerful force for change.

Aims:

  • to present the human consequences of stillbirth and other perinatal loss
  • to share information on current activities and research programmes
  • to strengthen collaboration on initiatives to reduce perinatal death
  • to share knowledge and experience of best practice in care when a baby dies
  • to encourage networking and informal exchange.

More

5 comments:

Connie said...

I attended this in Washington DC two years ago. I enjoyed it. Was a little disappointed in some aspects (felt some doctors did not have enough time to give their talk - then saw the same doctor in two or three different sessions basically giving their same talk again). I did "enjoy" it and met some lovely people. Being that I'm a US person, I won't be attending this one, but if they swing back through the US again, I will definitely consider it.

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Jhene said...

It appears this post is from a couple of years ago. I would love more information about this kind of a gathering. I have made a short film that I believe could do a great deal of good in this kind of a venue.

After my own experiences I needed to believe that the world was different in a positive way because of the losses. I was driven to create something that would not have existed had I not miscarried. A filmmaker by trade, what resulted is a ten-minute short film The House I Keep, about a woman who struggles to come to terms with the loss of her baby through miscarriage. A relentless war between her internal and external life has plagued her recovery until she stumbles upon a curious symbol of hope that helps lead her back to peace.

After screenings of The House I Keep, I have been overwhelmed by the heartbreaking stories of miscarriage that women have felt compelled to share. These gatherings became transformative. Discussing the film has provided an 'appropriate’ place to share their own stories. Their silence was broken and isolation bridged. My mission for the film is to improve the mental health of women and their families mourning miscarriage by providing an identifiable voice through the film. The film is a platform for discussion and understanding, and hence, an impetus for healing.

With the film now complete, and ready to premiere in 2011, we are doing everything we can to raise awareness about the topic of miscarriage and our film. Please visit our website at http://www.thehouseikeep.com for more detailed information about the film. If you like what you see, please join us on facebook at http://www.facebook.com/pages/The-House-I-Keep/69409738707. Anything you can do to help us spread the word is, of course, very much appreciated!
Very best,
Jhene Erwin
Producer/Co-Director/Writer – The House I Keep

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