How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:

Welcome

A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog

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Monday, September 24, 2007

Many baby deaths 'can be stopped'

Growth problems could be spotted during pregnancy

As many as 1,000 stillbirths each year could be prevented if clinicians were able to spot when foetuses were not developing properly, a study suggests.

The NHS's Perinatal Institute will unveil research this week which points to "restricted foetal growth" as the key factor in many stillbirths. If this was picked up in pregnancy, these babies could be delivered earlier and have a greater chance of survival.

Britain has one of the highest stillbirth rates in Western Europe.

The 10-year-study by the Perinatal Institute found that some 40% of the 4,000 babies stillborn each year have growth problems. Of these, around two thirds may have survived if action had been taken.

"We are excited about these findings," said the institute's director, Professor Jason Gardosi.

"If we can recognise that babies are not growing as they should then they can be further investigated and, if necessary, delivered at the right time, and in a good condition, rather than being left in the womb and at continued risk of dying."

Professor Gardosi said in addition to the findings on foetal growth in relation to stillbirth, researchers were also starting to identify "an issue about resources", particularly when it came to the number of cases midwives must deal with.

These remarks chime with statements made by the new president of the Royal College of Obstetricians and Gynaecologists, Professor Sabaratnam Arulkumaran, who believes there are too few consultants and midwives to guarantee the safety of mothers and babies.

In a speech next month, he will cite data showing that most babies die during the night when hospitals have fewer consultants on duty. In an interview with the BBC last month, he said he believed there was too much focus currently on allowing women to give birth at home, and not enough attention on improving conditions in hospital where the majority ultimately give birth.

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