How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:


A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
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D. Adding a link to this site from your blog


Tuesday, January 1, 2008

Book deals with joy and grief of twins

Book deals with joy and grief of twins
Frisco: After losing one daughter, mother chronicles feelings
12:00 AM CST on Thursday, December 27, 2007
By DAN X. McGRAW / Special Contributor to The Dallas Morning News

Jennifer Hander plays with daughters Alexa, 2, and Addison, 13 months, at their home in Frisco. Ms. Hander has published a book, A Place of Peace, about the loss of Alexa's twin, Alysa.
They show her first day and her last, and what could have been for the Hander family's first pregnancy.

But 28 days after she was born, Alysa died because of complications of twin-to-twin syndrome. Her sister, Alexa, survived.

"We thought we were having the perfect pregnancy," Jennifer Hander said. "We were scared and shocked when we found out."

As Ms. Hander cared for Alexa during the first year of her life, she chronicled her feelings of losing one of her twin daughters. This year, the Frisco mother published a book, A Place of Peace, that documents that journey.

The twins' condition was diagnosed six months into the pregnancy. The syndrome causes twins to share blood vessels throughout the pregnancy, and at some point, one baby transfers its blood to the other, Ms. Hander said.

The cause of the syndrome, which occurs only in identical twins, is not known, Ms. Hander said.
Like many new parents, the Handers were unaware of the syndrome. The twins were delivered an hour after their parents were told about it.

Doctors who delivered the twins predicted that the Handers had a 90 percent chance of losing one child and an 80 percent chance of losing both.

"We just hoped that things would be OK," Ms. Hander said.

Because of the sudden transfer of blood, Alysa was left with very little blood in her body, while Alexa had too much blood. Doctors at the Medical Center of Plano worked to correct both problems.

However, 28 days later, Alysa died in her mother's arms. During those days, Alysa suffered bleeding in her brain that proved fatal.

"You are living the two extremes," Ms. Hander said. "You are mourning the loss of one twin but celebrating the life of another. The other twin serves as the reminder of what you might have had."

Because of the critical condition of Alexa, doctors ordered Ms. Hander to remain at home for the first four months of Alexa's life, and visitors had to be diligent about washing their hands to avoid getting the baby sick, said Lex Hander, their father.

"We had to be very strict," Mr. Hander said. "It was definitely a time she [Jennifer Hander] surrendered herself."

As Ms. Hander watched Alexa, she jotted down her feelings and thoughts of losing Alysa. She began to confront her feelings head on. The journal eventually evolved into a book about her experience.

"I was hesitant to publish it at first, because it has my deepest, darkest thoughts," Ms. Hander said. "But I was able to get over that, and my hope is that people can see me as an example."
Ms. Hander said she hopes people who read the book can use it to confront their feelings of losing a twin or become educated about the syndrome.

"If I can help only one person, it was worth it."

As Alexa grows up, Ms. Hander is teaching and reminding her of her sister. Ms. Hander refers to Alysa as the other sister who is an angel to Alexa, and it isn't something she is about to give up.

"It is just something that I intend to raise her with," Ms. Hander said. "I don't want it to be something she would be distraught about later."

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