How to Use the Directory

Welcome to the Miscarriage, Stillbirth, and Infant Loss Directory. This blog is maintained by volunteers to act like a "telephone book" for blogs dealing with the loss of a baby. It is open to anyone who has ever lost a baby in any way - we do not discriminate by age of your baby or circumstance of your loss. If you think you belong here, then we think you belong here.

When you submit your blog, it is manually added to the list, so it may take some time for it to appear on the list. When you submit your information as requested below, it is easier to spot those emails that have been redirected into the spam mail.

Blogs are listed by category of loss. This is to help you find blogs that deal with circumstances that may be similar to yours. That being said, it can be a moving and healing experience to read the blogs of people who's loss is not similar to yours. You are welcome to read any of the blogs listed here.

Though there could be literally thousands of categories of loss, we have created 4 broad categories: before 20 weeks, after 20 weeks, after birth, and medical termination. Please note that most blogs dealing with extreme prematurity are listed in the "after birth" category even though the gestational age might suggest a different category.

As a warning to those feeling particularly fragile, many of the blogs listed here discuss living children or subsequent pregnancies. In the sidebar links, those blogs are usually marked with an asterisk(*). However, the circumstances of individual bloggers will change, and sometimes the listings do not get updated. It is possible to encounter pictures of living children or pregnant bellies on the blogs listed here.

We also have a list of resources (books), online links, and online publications that you may find useful. Scroll all the way to the bottom of the page to see the full listing of links.

We are so sorry the loss of a beloved child has brought you here. We hope that you will find some solace within the community that has gathered.
Please help us set up this resource for grieving families by:


A. Submitting your blog information
(Email Subject: Please Add My Blog)
  • The link to your blog
  • The title of your blog
  • The topic of your blog (see sidebar - Personal Blogs)
  • If your blog discusses living children or subsequent pregnancy after loss

B. Submitting links to helpful web resources
(Email Subject: Please Add This Link)

C. Submitting titles of helpful reading materials or videos/films
(Email Subject: Please Add This Resource)

D. Adding a link to this site from your blog


Sunday, February 3, 2008

Healing and hope through stillbirth research

The hardest day of Tara Adams' life was the day she returned home after giving birth last summer. Instead of carrying Kylie in her arms, Adams clung to tokens: molds of her stillborn daughter's hands, wisps of hair, a photograph. And she made plans to bury her baby.

Adams had a healthy pregnancy she felt her daughter kick just one week before her delivery one month early so one question was constant: "Why? Why would this happen?" the 31-year-old South Jordan mother of three recalls. "You almost think back, what did I do wrong? Did I do something I shouldn't have?"

To help parents nationwide seeking similar answers, the University of Utah is analyzing all stillbirths in Salt Lake County from 2006 through 2008 and attempting to pinpoint the many causes of death.

Most parents who lose their babies during pregnancy never find out the true cause. With almost 27,000 losses a year, stillbirth is 10 times more likely to happen than Sudden Infant Death Syndrome. But pregnancy loss remains largely unscrutinized in the United States. Doctors are hesitant to suggest autopsies. Insurance companies may not cover them. And there's an attitude that fetal death is "God's will," or is at least unavoidable.

For the thousands of parents who never get to bring their babies home, the research under way represents hope. Doctors can't prevent stillbirths if they don't know what caused them in the first place.

"Look at SIDS: SIDS deaths have dropped dramatically [since] they started doing research," says Rose Carlson, program director of the Missouri-based national office of Share Pregnancy and Infant Loss Support. "People haven't focused." The U. is doing its research as one of five universities in the Stillbirth Collaborative Research

The network is attempting to answer basic questions: How often does stillbirth occur? What are the causes, and what are the best protocols to investigate the deaths? Robert Silver, chief of the U.'s division of maternal and fetal medicine and principal investigator for Utah's portion of the study, notes researchers have done a better job of preventing infant death. Infant mortality dropped 35 percent from 1985 to 2001; stillbirth rates declined just 17 percent in the same time period. More

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